Prescription Restrictions Update
Some areas of the UK are experiencing changes to the quantity and/or type of gluten-free foods they are able to obtain on prescription. We are aware that there are currently some areas of the UK where consultations are taking place or there are proposed changes coming.
You can see the latest news on areas under consultation on Coeliac UK website.
Along with Coeliac UK, we are advising local CCGs of the impact of changing their gluten free prescribing policies, but the strongest voice comes from you! So, make sure you have your say on gluten free prescribing in your area.
If you are aware of any changes or proposed consultations please get in touch with Juvela 0800 783 1992 or email firstname.lastname@example.org.
We have put together some advice and information on what you can do to make your voice heard;
Contact your patient organisation
If you are having any such difficulties, there are a number of official patient organisations across the UK whose role is to ensure the voice of the consumer is strengthened and heard by those who commission, deliver and regulate health and care services.
It is worth making your local patient organisation aware of any difficulties you have experienced in obtaining your staple gluten free foods on prescription and the impact this may be having on your adherence to a gluten free diet – and ultimately on your overall health.
These are the relevant contact details depending on where you live:
If you live in England:
Website: Healthwatch UK
Phone: 03000 683 000
If you live in Northern Ireland:
Website: Patient and Client Council
Phone: 0800 917 0222
If you live in Wales:
Website: Healthcare Inspectorate Wales
Phone: 0300 062 8163
If you live in Scotland:
You will be aware that Scotland has introduced the Gluten Free food Service across all areas of Scotland, which is a pharmacy-led supply scheme.
Coeliac UK’s advice
Coeliac UK has acknowledged that the prescribing of staple gluten free foods should be viewed as an essential NHS Service which should be available to all patients diagnosed with coeliac disease and dermatitis herpetiformis. They suggest the following actions:
1. Take a copy of the National Prescribing Guidelines* and Prescribable Products List to your GP. This can be downloaded from the Coeliac UK website by clicking here.
2. Discuss with your GP which gluten free staple foods are available to you, in order to understand more about their decision making.
3. Speak with your local dietitian, as they can advise you on your individual nutritional requirements and offer support if you are finding it difficult to follow the gluten free diet.
4. Take a look at Coeliac UK’s recent website article regarding Gluten Free Prescribing Restrictions.
What are Juvela doing to help?
We believe that it is important to maintain and protect the medical status of coeliac disease to ensure that you receive appropriate care and support. For you, a gluten free diet is not a lifestyle choice, but essential for good health and wellbeing.
As a specialist gluten free manufacturer, we are able to provide you and healthcare professionals with a range of additional support services and resources that many of the retail ‘Free From’ manufacturers do not.
We attend NHS dietetic clinics which see both newly diagnosed coeliac patients and those undergoing review and offer support to any new services springing up in Primary Care. We also understand the challenges that the NHS is facing and as such are actively supporting new supply pathways for the provision of gluten free foods that demonstrate cost efficiencies for the NHS, helping deliver an improved service to you as the patient.
Additionally, we aim to respond to and help you with any issues that you may be having in effectively managing your gluten free diet as quickly as possible with our combined wealth of knowledge as a company. Advice from our home economist, customer service team and company dietitians can be accessed through our website, social media accounts, telephone and via email. This is an added service we are renowned for and such advice is not always on hand from other Free From retailers.
We hope that this article enables you to put forward your views regarding any prescribing issues that may be affecting you.
If you are restricted and still want to purchase Juvela products, you can order them directly from your pharmacy, however we advise you to always check the price before ordering as the pharmacies can add their own mark up so the price will vary, which means its worth shopping around to get the best price. There are also some online pharmacies who sell our products and offer free delivery when you spend over a certain amount.
The Juvela Team
*Document refers to ‘Gluten Free Foods: A Revised Prescribing Guide’ and can be viewed in full here.
Coeliac Awareness Week 8-14th May 2017
This year Awareness Week will focus on eating out and takes place between 8-14 May.
For more information on this campaign and how you can get involved in the campaign for better gluten free food when you’re out and about. Find out more on the Coeliac UK website.
To help raise awareness of coeliac disease, Juvela in partnership with the National Pharmacy Association has produced an awareness poster entitled “Could this be you?”.
The poster highlights how many people with symptoms commonly associated with IBS, such as bloating, constipation and diarrhoea, could possibly have coeliac disease.
If you would like to help raise awareness and know of a ‘well viewed’ noticed board that could house a copy of the poster, be it at your place of work, local pharmacy, GP surgery, supermarket or hospital, then send us your address and the number of posters required to email@example.com and we’ll pop them in the post for you! Alternatively call 0800 783 1992 and request some from our team.
You can Download the ‘Could this be you?’ poster from our ‘Downloads’ Section.